Mother of boy with rare chromosomal syndrome denied homecare support

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“We don’t have the child we had a few years ago.” An exhausted mother says her son who is living with a rare genetic condition has regressed due to a lack of support from the HSE. BKNT

An exhausted mother who is not getting home-care support for her son who is living with a rare genetic condition says her family is being failed by the HSE.

She said children with 22q can often function well enough to “get part-time jobs and live a comfortably normal life.”“You know, his cognisance has declined and because he didn’t get proper mental health support at the time … “My husband and I never get to go out together. My son Aaron has to sit the Leaving Cert with all that’s going on. There is no support.

 

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My children are the same as well as the funding revenue remove. They are screwing the vulnerable

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