Jimmy Fearon, Debra Ireland CEO, said: “It does not cure it but if a four-hour bandage change suddenly becomes an hour or two hours that is transformational. It is an unbelievable difference to their lives,” he said, adding that it could be particularly beneficial to children with the condition. “You could hopefully control it more with [the treatment].”
With the UK, alongside countries such as Germany and Austria, likely to acquire the treatment soon after European approval, Mr Fearon said it could lead to a scenario where someone in the North had access to the gel but someone on the other side of the Border would not. “We plan to become more vocal and to try and get people to listen,” he said.
Liz Collins, whose daughter, Claudia , has the severest type of EB, said of the Krystal treatment: “You live in hope of something. It is not a cure, it is something that will ease their life or ease their pain in some way shape or form.”
Source: Healthcare Press (healthcarepress.net)
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