Joanne O’Riordan: Dear Gianni Infantino, I too feel disabled – because I actually have a disability

I feel angry because I have to fight with middle managers in our health system every day to live a life that is normal and free. I know you’re unaware, Gianni, but imagine having to give a month’s notice to the health service because you need to stay overnight due to work commitments or, God forbid, you actually want some time off.

I feel sad because I have been robbed of living a normal life because, unfortunately, while I’m the one who has to identify as disabled, I’m actually more disabled as the environment around me and those in charge forget daily that I exist. I feel exhausted because whenever I wake up, I know somebody, somewhere, is ready to tell me, ‘no, you can’t do that’ or ‘we just can’t do that’. I’m not talking about a week’s holiday in Ibiza. I’m literally talking about basic access to buildings or public transport. Did you know, Gianni, if I spontaneously decided to hop on the train to visit friends in Dublin, a ramp to get on said train isn’t guaranteed unless I have informed someone in advance.

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