A young boy whose parents started a fundraising campaign which raised over €3 million to bring him to the US for “lifesaving” treatment will now be unable to receive the drug, his family has disclosed.has type 1 SMA , the most severe form of a rare neuromuscular disease, which causes muscles to weaken over time.started the “Do it for Dan” campaign, to raise funds to allow the family to travel to the US to avail of an infusion of a drug called Zolgenmsa.
Only around five per cent of the population are susceptible to the virus, which the child contracted in recent months. “The last few months have been surreal for us and although the news is very upsetting, we will never forget the kindness and generosity we received, and we could not be prouder of how our little boy touched so many people,” she said.