She said Ireland has the highest rate of the condition in the world – and more funds are needed for a bigger population.She said there are better outcomes for CF patients thanks to improved services, but CFI still relies on donations every year.
Today is 65 Roses Day, the national fundraising day for cystic fibrosis. CFI is calling on people to support the charity by donating online atThe charity is seeking to raise €350,000 this year. CFI is also encouraging people to enter the 65 Roses Challenge, where participants can complete any challenge with a “65 theme”. This includes a 6.5km cycle or walking 65,000 steps.She said her family did not know she had the disease until she was 10 years old as she was originally misdiagnosed with severe asthma.
“I was just constantly unwell; I’d miss so much school,” she said. “My sisters were younger than me and just past me straight away.”Ms Rafter said her whole life is “really affected” by her condition, including her social and professional life.“I can't really over commit myself to a thing, I need to be able to let some things off when I'm just not well enough to attend.
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