Former RTÉ journalist with motor neurone disease says he wants friends from the LGBTQ+ community to speak at his funeralCharlie Bird’s distinctive voice, with which he made his living, is now almost completely gone.
I grew up at the time when so much injustice was around. The Dublin Housing Action Committee, the Vietnam war, the anti-apartheid movement, then Catholic families being burned out of their homes in Belfast, that was the backdrop to my life as a teenager and I was on the streets protesting In the house he communicates with pen and paper — “It’s more personal,” says Mould — but the voice app, which uses his actual recorded voice, has been indispensable for public events. He uses it now: “Losing my voice has been a dreadful blow to me. It was my life and it was the main tool for my job. We were initially told that I could have a voice bank system, which would give me an English voice, a thought which was very upsetting for me.
Eventually he writes: “a social conscience”. That was the spirit that drove him throughout his career. How has the diagnosis affected his outlook? “I want to be friends with everyone now,” he says. “In a way I want to bury the hatchet now. Not that I have many to bury… I really do want to show kindness to everyone...I’m not getting upset with the smaller things now in life… To be blunt I’m not going to end up bitter and twisted in whatever time I have in my life now. For whatever time I have left I look on the bright side of things now.
There are other distressing symptoms. “An unusual manifestation of the disease is what is called pseudobulbar affect PBA or pathological crying and laughing,” he says, using the app. “This refers to uncontrollable crying or laughing, which is a distressing symptom.”“We could be out walking and someone could say ‘Hello, you’re amazing Charlie’ and he’ll burst into tears,” says Mould.
He learned a lot from how CervicalCheck campaigner Vicky Phelan has dealt publicly with her illness, he says. “And now I have taken so much comfort in getting to know Vicky Phelan. She has helped me enormously to come to terms with what I am facing.”
He's beginning to get irritating. Why in the name of lord holy jaysus does he want a pride flag? Has the Parkinson's made him gay?
Omg just go away
Not an Irish flag no?
We are all going to die, unfortunately. Most of us will just get on with it.
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