What it feels like: Living with pulmonary hypertension

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Nicole Dempsey was just 39 when she was shocked by a diagnosis of PulmonaryHypertension. This is her story. phacanada – via healthing_ca PH HealthNews

. It’s a progressive disease, but there are medications to manage and stabilize symptoms. Often you start you with one or two depending on the severity of symptoms. Sometimes you need to go to three — currently, that’s where I am. In Canada, there are ten approved treatments, two of which are 24 hour intravenous therapies, which are infused via a Hickman catheter through the chest. I am also on intravenous therapy 24/7.basically open the vessels to help the flow of the blood in your body.

I’ve been doing this for five years, so I am used to it. I have to change the cassette every 24 hours. There’s a short time which I can be without the medication — only six minutes. Once six minute hits you start getting symptoms of lack of medication.A lot of people are scared to go on IV medication because of that reason. If you have a faulty pump or you know something’s going wrong, the alarm goes off, there’s a very short time in which to get everything working properly again.

 

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