'There's nothing I can't do': What it feels like to be deafblind

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From Healthing by Postmedia Penny Leclair lost her sight as a baby and then her hearing as a young adult. Her biggest joy in life? Advocating. CNIB healthing deafblind

After battling colorectal cancer and having his descending colon, rectum, prostate and bladder removed, Timothy Sproule is back to work full time and says his experiences have only made him a better surgeon.

I was a very outgoing child with protective parents. That was frustrating. I just wanted to do what other people were doing and it took me a while to understand that sometimes I couldn’t do it because it required sight. Like I couldn’t ride a bike. I also went to the CNIB since I knew they had a few deafblind people. They used to have a weekly social, and some of them used American Sign Language . Since they had lost their vision, you would touch their hands to feel the ASL. So I learned “manual,” which is a [tactile way of] spelling words. Then I had a problem — I could communicate with that group of people, but I couldn’t communicate with family or other people.

I also like to shop and find good deals. I like to cook, so finding the things in the stores knowing your prices and having interveners give me all the information about which product to buy and which is going to be the better deal in terms of what’s in it. I really depend on the interveners a lot to do things.It’s very organized. Usually I take everything out that I’m going to use, like all the spoons, so it’s all there and I don’t have to run around and try to hunt for anything.

 

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