Only half of Albertans diagnosed get specialized care they need: Parkinson Association | Globalnews.ca

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The executive director of the Parkinson Association of Alberta says the three movement disorders program clinics in Alberta don’t have the capacity to see the amount of patients who are diagnosed as they progress through the disease.

Monty Schnieder is new to boxing. The 72-year-old Calgary man donned the gloves to take on the biggest fight of his life against Parkinson’s disease.

The boxing and regular exercise helps with mobility. Schnieder does voice exercises too with the Parkinson Voice Project.“You put the two together and it almost makes it like I’m a normal person,” said Schnieder with a laugh. “Of the people who are living with a diagnosis today in Alberta, it would be generous to say that half of them are receiving the specialized care that they need,” Tordoff said.Patients may only be able to see a neurologist once a year, which is challenging when symptoms are constantly changing. That’s where the support they get from local Parkinson’s groups help fill the gaps.

Hu said many patients have very little connectivity with doctors regarding their Parkinson’s diagnosis.“Parkinson patients see their neurologist for an average of about 45 minutes a year. So the idea is that these university students, who are very motivated and want to do volunteering work, can help.

 

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