Alexis Wilson is photographed at home with her seven-year-old son Emmett, who has severe autism, in Thornhill, Ont., on Tuesday, April 30, 2024.Alexis Wilson suddenly awoke one night three years ago to her four-year-old son Emmett in her room, screaming, scratching his face and hitting his head against the wall.
Families of those children are vocal about their concerns with the program. They say it is slow — Emmett has been on the wait-list for more than 2 1/2 years — that it is not truly needs based, that a lack of service providers means that even with money in hand some families can’t find help, and that there is almost no transparency.Families are not told where they are on the wait-list and how long they might be waiting for access to funding for core therapy.
Wilson has paid out of pocket for Emmett to do applied behaviour analysis, or ABA, a core therapy for children on the autism spectrum, but she cannot afford to keep it up at the moment. She and her husband are in debt and they have spent much of her parents’ and her in-laws’ savings helping Emmett.He currently attends a private school for children with disabilities.
Then, in the months leading up to the major episode, he was losing some speech skills and having more temper tantrums, and another assessment conducted just two weeks before that night concluded he did have autism.
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