“In terms of raising hopes for a positive future for patients, given the specifics of this condition and the limited government help, it becomes a tricky proposition,” admits Muth, who notes that the LAO and its fellow provincial lymphedema organizations regularly work to connect with politicians about the condition and its impact on patients in hopes of establishing more affordable treatment for patients and accessing funding for research.
“Both the large number of lymph nodes removed and the radiation I received as part of the cancer treatment put me at risk for lymphedema,” she says. “My left leg is affected with chronic swelling from the toes to the thigh. I have had cellulitis, a serious skin infection, three times. Each time, the lymphedema progressively gets worse. The early challenges were getting assessed and finding treatment, as most family physicians don’t know much about lymphedema.
“I learned early on that, as with any chronic disease, learning everything I could about my condition and diligent self-care would give me the best success,” she says, adding that, now, “I am able to walk half marathons, continue my exercise routines and play tennis competitively.”first
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