Frustrated Val Caron parents raise home care concerns

A Sudbury family with a seriously sick child is speaking out about what they say is a failure of the for-profit health-care system that leaves them and other families unable to get the level of care they need.

Speaking for nearly an hour, Senior said her family say they have faced difficulties and disappointments in the level of care provided to her son who has a disease known as Agenesis of the Corpus Callosum, a condition where the two sides of his brain are not adequately connected. Senior said, as a nurse and also as a mother, she is aware of the level of care Alex needs, but she has been disappointed time and time again.

"The issue is that they would never stay for the duration of the visit,” Senior said. “So they would set up the feed and even though they were getting paid to stay there and watch the treatment, or you know, supervise the treatment, they would go render care somewhere else, where they were also being paid, and then returned back to the school.”

"Most of them are in such a vulnerable position that they cannot risk the little wee bit that they have if they lose this," said Gélinas. Gélinas said that is a failing of the for-profit system in Ontario, which puts the onus and workload on the families.

Source: Healthcare Press (healthcarepress.net)

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