Katelyn Campbell administers Cystadrops eye drops to her children Nora Campbell, age 2, and Alan Campbell, age 6, after school at their Wallaceburg home.The Ontario government has begun covering $100,000-a-year eye drops for an ultrarare disease, bringing relief to patients but underscoring how the Italian company that makes the drops managed to escape the scrutiny of Canada’s drug price regulator.
But in this case, the PMPRB is powerless: Recordati Rare Diseases Inc., the Milan-based pharmaceutical company that makes Cystadrops, has declined to apply for a Canadian patent, putting the drug out of the regulator’s reach. Amir Attaran, a professor in the faculties of law and medicine at the University of Ottawa, said it was “scandalous” for Recordati to put a six-figure list price on a tweaked version of an old, easy-to-make drug.“It’s nothing but price gouging,” he added.
A two-week supply of Cystadrops for her six-year-old son, Alan, came with a pharmacy receipt of $4,289.76 – which works out to more than $111,000 for a year’s supply. Cystinosis is a genetic disorder that causes an amino acid called cystine to accumulate in lethal amounts in organs, beginning with the kidneys. Ms. Campbell administers almost 40 doses of medication, including eye drops, to her two children every 24 hours to keep the disease at bay.
In the end, Ms. Campbell may have no choice but to switch Nora to Cystadrops soon. The hospital pharmacy at the London Health Sciences Centre stopped making the cheap version last year after new standards for compounding pharmacies came into effect. The hospital then outsourced the mixing of the drops to a compounding pharmacy in Quebec, which itself quit mixing the drops after Health Canada approved Recordati’s version.
And Fed's or Province doing nothing about it
We have summarized this news so that you can read it quickly. If you are interested in the news, you can read the full text here. Read more:
Canada Latest News, Canada Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Leafs' costly trend of falling behind early continues in loss to Canadiens - Sportsnet.caThe Maple Leafs’ disturbing trend of letting their opponent draw first blood continued as the Montreal Canadiens soundly defeated their forever rival 5-2, seizing the first two games of the season series. MapleLeafs lukefoxjukebox FireBabcock MapleLeafs lukefoxjukebox The Maple leafs suck and that's the truth MapleLeafs lukefoxjukebox Changes need to be made before it becomes the accepted norm. It’s time, sorry Mike.
Source: Sportsnet - 🏆 57. / 59 Read more »
Plain cigarette packs to hit shelves as 'best in the world' regulations kick inSmokers will soon see their cigarette packs stripped of logos and distinctive designs as federal rules make drab brown the default colour for tobacco brands next week. Tax free cigarettes are sold on reserves in Canada for under $20 a carton when everyday consumers pay over $140. How is this not considered discrimination based on race? Is this really a “best in world” regulation? canadiancharterofrightsandfreedoms Buy a cigarette case is all one has to do..addiction isn't a visual thing. Some examples are heroin addicts with infected track marks, meth heads with decaying teeth, addiction is addiction. If this helps the younger generation from ever starting then its worth it. Now do booze.
Source: CTVNews - 🏆 1. / 99 Read more »
Plain-packaged cigarettes to hit Canadian shelves as new regulations take effect on Nov. 9All packaging will feature the same brown base colour, basic grey text and minimalist layout under the new requirements They can pack them in ziplock bags covered with plain paper and write the name with pencil...... just waste the time and resources...and our money! No point, as long as you have a legal joint! LITERALLY EVERYWHERE THAT DOES THIS SEES AN INCREASE IN SMOKING RATES! Way to protect Canadians! FuckingIdioticGovernment TaxWasters CDNpoli Should come with $$$ signs instead for all the taxes freeloader government places on them.
Source: globeandmail - 🏆 5. / 92 Read more »
Canada's Bianca Andreescu loses opener to Simona Halep at WTA Finals - Sportsnet.ca🇨🇦’s Bianca Andreescu has lost her opening match at the WTAFinals. The 19-year-old from Thornhill, Ont., fell to her idol Simona Halep of Romania 3-6, 7-6 (6), 6-3 on Monday. Can’t win them all Bianca lost but it took Halep 2 hours and 34 minutes to win it. Such a shame Sportsnet could not be bothered to buy the WTA rights. We finally have a grand slam champion yet Canadians can't see Bianca on Canadian television. Flash in the pan
Source: Sportsnet - 🏆 57. / 59 Read more »
Leafs' costly trend of falling behind early continues in loss to Canadiens - Sportsnet.caThe Maple Leafs’ disturbing trend of letting their opponent draw first blood continued as the Montreal Canadiens soundly defeated their forever rival 5-2, seizing the first two games of the season series. MapleLeafs lukefoxjukebox FireBabcock MapleLeafs lukefoxjukebox The Maple leafs suck and that's the truth MapleLeafs lukefoxjukebox Changes need to be made before it becomes the accepted norm. It’s time, sorry Mike.
Source: Sportsnet - 🏆 57. / 59 Read more »
Canada's Raonic beats Norrie in first match at Paris Masters - Sportsnet.ca🇨🇦’s Milos Raonic has won his first official match since early August. Raonic, from Thornhill, Ont., downed Great Britain’s Cameron Norrie 6-3, 6-2 in the first round of the RolexPMasters on Monday. RolexPMasters Slow down Canada he will get hurt or lose in semis.
Source: Sportsnet - 🏆 57. / 59 Read more »