With no running water and only a wood stove to heat his remote Quebec cabin, Mark Hogben starts each morning by making a fire and boiling lake water.
But what really caught viewers’ attention was the fact he does it all with a neurodegenerative condition. He says the first video in which his stage three symptoms are apparent drew the highest audience. Hogben says he moved to his island refuge on Quebec’s Lake Kipawa about seven years ago, and has largely embraced the solitude – save for the twice-daily uploads for his nearly 164,000 online followers.
Unnerved by the early symptoms, he says he moved to his cabin about 600 kilometres away to fulfil a lifelong dream to live on the lake. He also believed the new lifestyle – including time spent outdoors, regular exercise, and more independence, as his doctors suggested – would help manage symptoms.“I’m very aware when I’m talking to somebody and their gaze goes to my shaking hand. I know what’s going through their mind. At the beginning, I didn’t want any more sympathy.
Daily TikTok uploads and the online friends he’s made have helped him through the dark winter months. He says making videos, responding to comments, and checking his analytics keep him creative and busy, and that helps him avoid boredom and loneliness.“I see life like a canoe trip,” he says. “Sometimes, you don’t know where the portage is until you get there. I’ll keep doing this as long as I can; I’ll figure out tomorrow when I get there.
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