The parents of a U.K. toddler say it's 'absolutely mind-blowing' to see their daughter, enrolled in a gene therapy trial, hear for the first time.
London — One of the youngest children in the world to receive a new type of gene therapy to treat genetic deafness can now hear for the first time in her life. The family of the toddler taking part in a medical trial has called the change in their daughter 'mind-blowing.'Opal Sandy, now 18 months old, was born with total deafness due to a fault in the OTOF gene, which makes a protein called Otoferlin.
'Opal's doctors 'played the sounds Opal was turning to, and we were quite mind-blown by how soft it was, how quiet it was,' the father said. 'I think they were sounds that, in day-to-day life, you might not notice yourself.'The little girl has even started speaking, the family told BBC, saying words like 'Mama' and 'Dada.
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