Federal officials say they are encouraging states to continue family caregiver payments.
The money allowed the family to build some savings since Jason quit his job several years ago to become a caregiver. It also allowed them to start taking the girls on outings to socialize them. They would make regular trips to Walmart so the girls could learn how to make choices and pick out a small item to buy.
But she also noted that there are concerns both nationally and at a state level about the potential for fraud when paying family members as opposed to an agency that may be subject to more oversight. States also want to make sure that any family caregivers are trained properly and provide quality care.
He says each new one takes a few weeks to train, and then they frequently leave for a job with better pay. More than 650,000 people were on waiting lists for home and community-based services in 2021, according to another KFF report. Who winds up on that list can depend on factors like worker shortages, the number of available services and whether states check patients on the list for eligibility.
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