'I Am: Celine Dion' shows how life has changed for the 56-year-old singer since her diagnosis with Stiff Person Syndrome.
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In December 2022, Dion revealed that -- after months of struggling with heath issues, including muscle spasms and stiffness -- she had officially been diagnosed with SPS, a rare autoimmune disorder. , Stiff Person Syndrome is"a rare disorder of motor function characterized by involuntary stiffness of axial muscles and superimposed painful muscle spasms, which are often induced by startle or emotional stimuli.
"Part of the disease is that as soon as you go into a contraction, sometimes … the signal to release it, doesn’t understand, so it ends up just staying in a contracted position,” explains sports medicine therapist Terrill Lobo. Paralyzed but sobbing, Dion signals to one of the medical team members by squeezing their hand until she is able to move again. When she regains her bodily functions, the singer tells her team that she feel"so embarrassed" by incidents like that.Since announcing her SPS diagnosis, Dion has been open with fans about how the condition has affected her life and career -- and effusive in her thanks for their support every step of the way.
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