Terminally ill children suffer from neglect, say health experts

, several stakeholders met to discuss palliative care implementation, raising hopes when the then children’s commissioner, Angie Motshekga, was urged to organise a presidential portfolio meeting.

“But Covid attacked, and the conversation was not picked up again. We recognise the need to redesign our health services for a broader focus. To move away from survival, not drop it. Neonatal mortality is still unacceptably high, but if we don’t start looking at children thriving, the gap between low- to middle-income countries and high-income countries will just get greater, and we’ll fall further behind,” he said.

It was crucial to create streamlined flows from rural clinics and community hospitals through to district, regional and tertiary hospitals, he added. “The question for me is, ‘what will it take?’ I’m somewhat pessimistic. In the current austerity atmosphere, it will be a difficult task. The bottleneck is not the availability of drugs or additional care, certainly not in hospital settings. It’s finding willing individuals willing to champion this cause.

She favours compulsory palliative care training for all categories of health workers, but especially paediatricians, oncologists and general practitioners. . Parallel services cannot fix a broken system. It cannot and does not work. You end up with the poor looking after the destitute and government washes their hands of the whole issue,” said Dinat.Dinat said a donor funded project started in 1998 demonstrated feasibility and good quality end of life care and that savings were possible in adult palliative care.

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