The Guilt of Living with Chronic Pain

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Many of those living with chronic pain are unable to fully explain why they're hurting. This can lead others to question the validity of their pain, resulting in a feeling of guilt that only worsens the pain, explains ArashEmamzadeh

. Why? Let us look at the research.

To synthesize the available evidence on the role of guilt in pain, Serbic et al. searched multiple databases and selected a final list of 12 investigations for the qualitative synthesis and six for the quantitative synthesis .Others assuming the patient’s pain condition is not legitimate. Patients who had not received a diagnosis yet or were exposed to opinions questioning the legitimacy of their condition reported feeling guilty or feeling like a fraud .The pain “made me feel kind of guilty… You know, there’s not real proof with back pain, anybody can say my back hurts.”Some people living with chronic pain felt guilty for not complying with the treatment.Assumptions regarding how one’s actions affect others in terms of the person’s inability to work or fulfill social roles .

Pain-related guilt was positively associated with pain behaviors and with pain interference with relationships, sleep, work, etc.Guilt correlated with worse physical functioning and greater fatigue and disability.Pain-related guilt was linked with diagnostic uncertainty, lower pain acceptance, and greater pain

 

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ArashEmamzadeh I have persistent idiopathic facial pain, which means nobody knows why I'm hurting. I also have occipital neuralgia, allodynia, photophobia, hyperosmia, hyperacusis, misophonia, and chronic migraines. And that's just above my neck. Nothing shows up on tests/scans.

ArashEmamzadeh Even if one can explain their pain, it is not understood & disavowed. Not helped by our dysfunctional pharma & drug laws.

ArashEmamzadeh I think some assume pain meds cure pain rather than lowering it. When I say my medical pain dx can be connected to past trauma that seems to get ignored.

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