Opinion: My 92-year-old mother fell down the stairs. Getting care was a nightmare

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OPINION: Getting care for my 92-year-old mother has been a nightmare. Strengthen yourself and your family—your human capital—in preparation for challenges you can’t yet imagine, Phil Dawson writes.

In November 2019, my 92-year-old widowed mother took an uncontrolled trip down a flight of wooden stairs in her home and got a helicopter ride to the regional trauma center.

A moment of choice had arrived. Medicaid rules required that she enter a long-term-care facility directly from inpatient rehabilitation. If we took her home, even for a day, she would need to experience another health crisis and inpatient stay before she would again be eligible for LTC benefits. We—her children—agreed that it was time for LTC.

Given the urgency of our situation, we chose the third option, with an engagement agreement dated Dec. 9, 2019. The hat was passed among the family, and those who could contribute to the endeavor were generous. On Jan. 10, I received a notice of “Request for Information to Verify Eligibility” from the Medicaid case manager. The request was for Form DHMH 257, or “Long Term Care Activity Report,” from Mom’s LTC facility. It’s essentially a detailed summary of the services she was receiving day-to-day, establishing her condition and need for professional care. This form must be provided by the care facility directly to the Medicaid case manager.

Institutional LTC is imperfect. This is a very generous statement. The staff members at the facility were mostly polite and competent, but significant medical mistakes were made and needed care wasn’t always provided in a timely manner. My daughter Leah, who was employed at a respected LTC facility for years, helped the family to square its expectations with reality. We learned that even better facilities are understaffed, plus the staff is typically underpaid.

 

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Only in America!

If you think that's bad, try having no one willing to share the burden with you, but then eagerly waiting for their inheritance after the funeral.

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