I Am High-Risk COVID-19. We Need to Talk.

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The hashtag HighRiskCovid19, which took off trending, is amplifying the voices of the disabled and chronically ill and putting a face to what’s at stake if we don’t all work together to limit the spread of the virus.

. Countless posters shared their concerns that not enough people are practicing social distancing, putting everyone in greater, unnecessary danger.

While each response to #HighRiskCovid19 is unique, together the stories offer two clear and unified messages: Life-altering illness and disability can happen to anyone at any time. And: Even if you think you don’t, you probably know someone who falls within this high risk category. I am one of them. Though stories of chronic illness seldom have a clear beginning, I always start mine the same way: Somewhere around the year 2000, as the world was gliding into a shiny new millennium, I got sick and I never got better. There were no public health warnings like we are seeing with COVID-19; nothing to let me know what was coming. I simply became ill and never recovered.

Like many #HighRiskCOVID19 folks, I have noticed that much of what the general population has been experiencing over the past few weeks—a suddenly altered lifestyle that includes long periods of isolation, difficulty getting basics like food and medicine, missed work and lost wages, and even awareness of one’s mortality and fear for their future—is a kind of amped-up version of what we already experience in our day to day lives.

I live alone and, like others, am frequently grounded by my symptoms. Pre-COVID, I have been forced to curtail socializing in order to manage my illness. Just a few weeks ago, a bout of severe vertigo and migraines meant several days at home with only my small dachshund. I wonder when the next flare-up will come. I wonder if I will ever have a chance to fall in love after this. I think about it often.

 

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