I Am Glad to Know: The Importance of Carrier Screening Through the Voice of a Carrier - Myriad Women's Health

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In advance of Rare Disease Day, MWH spoke with Taylor Kane, a carrier for x-linked adrenoleukodystrophy, on her thoughts on how carrier screening is a critical tool in guiding care plans. Read the blog here: rarediseaseday careaboutrare rarediseases

The goal of carrier screening is to identify individuals and couples who may be at-risk for passing down serious inherited conditions.make the right decisions for themselves and their families.

Patients have many options for how to use this information, and should feel empowered to make whatever decision is right for them and their families.LEARN ABOUT THE CONDITION | FIND A SPECIALIST | JOIN SUPPORT GROUPS | NOTIFY FAMILY MEMBERS |“If my carrier status could impact how my provider manages my prenatal care, I need them to have this informationTaylor shares why she feels it is essential for her providers to understand her carrier status.

 

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rarelikeher Thanks for continuously sharing your story and the importance of carrier screening! You inspire us this RareDiseaseDay and every day, Taylor!

rarelikeher YAAAAS TAYLOR !!!!

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