Her Son Was Born With 'Bubble Boy Disease' — Here's How They Lived in Isolation For More Than a Year

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'I missed literally every major celebration in our family because they all happened while we were in isolation.'

can feel overwhelming, particularly for families who are struggling to cope with their sudden lack of freedom and newfound limitations. For one Los Angeles-based family, however, the government mandate to"shelter in place" for several weeks straight has been, well, a theoretical walk in the theoretical park.

"I think, as with the rest of the world right now, you are just thrown into it," Armené told POPSUGAR of her 15-month experience in isolation."There wasn't a chance to figure out how to cope. At the beginning, I was just very numb and incredulous that this was happening, and as days went on, it just started to feel normal."Back in November 2017, Armené — a former grade-school teacher — had just given birth to her second son in relatively unremarkable fashion.

"My mind went blank, and I couldn't process anything our doctor was saying because it felt like the world started to crash down around me," Armené recalled."I remember thinking, 'How is this happening? He's so little. He didn't even begin his life yet and already it could be taken away.'" "I was not allowed to leave the room, even for food," she said of the sparse hospital quarters, which included one small locked window that overlooked a parking garage."My husband would come in a few times per week to take our clothes home, wash them, and bring them back."

There was no question that she'd entered into a depression."I think the hardest part was just being left with your own thoughts," she revealed."I felt awful about everything. I felt terrible I wasn't there physically for Vaughn. I felt like a ghost for Sasoun. I was trying to give him the needs of any baby — love, affection, nutrition — while also being scared out of my mind for his future. I tried to save up the sadness for when he was sleeping.

She'd been moderately active on social media, but it quickly became another flashing neon sign of what she didn't have."Anytime I signed on, I saw newborns who were born the same time as Sasoun at home, happy and snug in bed," she said."Meanwhile, I was pinning down my screaming child in a cold hospital room as he was getting test after test done, alone. I saw beautiful babies in such sweet first family photos.

 

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