. So it’s logical to assume that many Long COVID sufferers are women of color. But, just as Jenkins feared, many patients of color had no idea what was happening to them after they got sick. Cynthia Adinig, a 35-year-old Long COVID patient from Virginia, was one.
Daniel doesn’t consider herself a born activist—but she received her ME/CFS diagnosis on ME Awareness Day: May 12, 2017. “If you get your official diagnosis on that day, you don’t have a choice,” she says with a laugh. “You have to participate in advocacy.” Those ER trips did less to help her than the advice of ME/CFS patients, Adinig says. It wasn’t until she compared notes with a white friend who also has Long COVID that Adining realized how many tests and treatments shebeen offered. “I had to have blood, sweat, and tears to wait nine months post-COVID to get [a presumed COVID-19 diagnosis],” Adinig says. “Even after I get a presumed COVID diagnosis, I still go and see specialists, and they’re like, ‘Oh, I don’t think anything is wrong with you.
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