Amid Covid-19, Parents of Special-Needs Kids Face a Dilemma

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Covid-19: Special-Needs Parents Face Dilemma Amid Pandemic

Bella is one of hundreds of thousands of medically complex children whose parents are weighing the impossible decision of whether to send their children back to school. There are varying definitions of medical complexity, but the term applies to about two percent of the pediatric population, or approximately 3 million children, explains Dr. Nathaniel Beers, pediatrician at Children’s National Hospital in Washington, D.C.

Another lawsuit, against the Dept. of Education in Hawaii, is calling for the school district to provide compensatory services to students who have lost crucial developmental milestones and skills during the pandemic, which attorney Keith Peck says the district has not yet agreed to do. “To this date, even just two days ago, I had a conference in federal court with the judge and the DOE’s attorney, and the DOE was like, ‘I don’t know, there might be a plan,’” Peck toldin mid-August.

As a result of the disruption in services, many parents have reported that their children have regressed significantly, losing precious milestones and abilities they had, in many cases, worked for months or years to achieve. “When she has the appropriate services in place, we sometimes forget that she has any difference or any special needs,” Brandis Goodman says of her fifth-grader, Raya.

Yet parents must balance their concerns about regression and their own mental health with the fact that, depending on their conditions, their children may be at heightened risk for complications from Covid-19. Nearly all families must navigate this tension when deciding whether to send their children back to school, but for parents of medically fragile children, the decision tends to be even more complex.

 

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