On April 1, 2020, at 7:35 p.m., Lucy Van Doormaal was born at a hospital in Vancouver, weighing 7 pounds and 13 ounces, with big bright blue eyes. Right away, she took to sucking her thumb.She was a perfectly healthy baby until two weeks later, when Lucy's parents began to notice her struggling to breathe and move her arms. When she was no longer able to bring her thumb to her mouth, they knew something was very wrong."When we first took her home, we were in newborn bliss.
Data from clinical trials presented by AveXis showed"rapid, significant, clinically meaningful benefit in SMA including prolonged event-free survival, motor milestone achievement and durability," the spokesperson added.Zolgensma alters the patient's biology -- but it's still not a guaranteed cure.
in Kuwait, 60 Kuwaiti children infected with this disease and this treatment was provided to them free of charge by the Ministry of Health.
Sad
If major Tom can raise 20+ million walking around his garden for the NHS in UK. This should be a breeze. I'm in. Let's save this little Angel
Hope that they can raise that amount.🙏🙏🙏
Historical perspective...medical science and hygiene have advanced so far that what was once a common occurrence - the death of a child - is now a rare tragedy in the 1st world. In olden days, a common response to this plight would be, 'You're still young; you can have another.'
How could a 1 time treatment cost that much? What is the mark up?
BillGates Do the thing
That’s one way to make a baby worth a million
💔🙌🏾
Why CNN don't give money to them?
Hey TomBrady why don't you save this little human being, you can afford it, you got a PPP loan for TB12sports
Okay , Silicone Valley Billionaires, this is an easy one for you . Helping this little baby should be on your list.
CNN. I WILL GLADLY HELP!! SINCERELY SHELLIE GARY. PLEASE PRAY. PLEASE PRAY. EVERYONE PLEASE PRAY AND GIVE GIVE GIVE. PLEASE PRAY. GIVE.
Life or death they should be able to get treatment and raise money later or never. Where are all the pro life people when it comes to saving a baby already born.
Where another boys?
If every one of your followers have a dollar we can do this.
A dot in a bucket from big pharma profits
Perhaps Planned Parenthood could donate some of the million$ they have received from taxpayers, which they didn't deserve.
Why isn't there a public out cry for anything that costs 2 million dollars, especially when the research for the said thing was most likely covered by grants?
And there is no American Pharma Corps who make meds in China and cents per pill willing to help? Shameful!
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