The MS research that's offering me hope

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Caroline Wyatt: The MS research that's offering me hope

Caroline Wyatt visited Prof Robin Franklin to find out more about a drug that might help stop the progression of MS

Karine began using a walker to help with her balance and stamina, and then a scooter when she could no longer walk very far. One new drug - Ocrevus, or ocrelizumab - was recently licensed for early PPMS in the UK but came too late to help Karine. For both, I am eternally grateful, as they mean I can continue to work at the BBC, in the job I love.The fatigue that had long been my worst symptom is now back with a vengeance, so that staying awake throughout a busy working day remains a challenge.

Dizziness is now a constant companion. It rarely goes away, making car travel or even buses a nightmare. Just turning my head too fast can make me stagger or fall over. In the mornings, both my hands and my feet are numb and frozen, then painfully full of pins and needles before warming up enough to be usable a few hours later.

I have had to face the fact that I have now probably gone from the relapsing-remitting phase of MS into the secondary progressive phase, for which there is currently no treatment licensed in the UK to stop the relentless progression that will affect so many of the 100,000 or more of us living with MS here.

Source: Healthcare Press (healthcarepress.net)

 

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there's o n e MEDICINE t h a t Ms WYATT w o u l d N E V E R u s e on MORAL g r o u n d s: CANNABIS

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