Christopher Stephens has haemophilia A - his body lacks a protein that makes blood clot. A simple graze can mean the two-year-old bleeds uncontrollably.
His mother, Christy, 22, of Surrey, says:"Without treatment, there's the possibility that he could have multiple bleeds every week, every day. "He's not scared of things or worried. To him, he's a normal child. We try as much as possible to treat him like a normal child. But a couple of weeks ago, he was in hospital because he had a port infection[, where the tube enters his chest].
People with less severe forms of the condition have been able to get Hemlibra on the NHS in England, Scotland and Wales since 2018.
And which 'clot' thought that up? Boom, boom! 😂
MaddyTheNunja shitty superpower alert
Wonderful .
Let me say big congrats to Christy, and to wish her son all the best, as he will no longer have to be intravenously administered injection every day, but will be now be done subcutaneously fewer days, though until his next birthday. So, no one is permitted to die in ignorance.
That headline makes it sound like they have a choice
Great times are finally here for all sufferers of haemophilia A. I should think with time emicizumab will phase out the traditional factor-VIII treatment. But in the meantime, juxtaposing both treatments is no problem as long as we can adequately make appropriate switching.
Get it quick before Brexit makes it a fortune
Good
Ra ra Rasputin
Hope it's manufactured in UK from raw materials easily available in the UK. Otherwise, after Brexit.....
You know you can just say hemophilia, right?
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