'My husband Rob Burrow is imprisoned by MND – but I’m so proud of him’

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'Rob is so strong - I utterly dread the day he dies'

In December 2019 Leeds Rhinos rugby legend Rob Burrow received a devastating diagnosis of Motor Neurone Disease. But the star hasn't shut himself away from the world.

Get exclusive celebrity stories and fabulous photo shoots straight to your inbox with OK!'s daily newsletter. You can sign up at the top of the page. Because of his concussion history from rugby he was seen by a specialist within three weeks. Blood tests results and an MRI scan were normal, but then came the nerve conduction study . Soon after, Rob received the shocking news of his diagnosis.

Maya said, “Why are you telling us this? It’s boring!” That gave us a giggle. But Macy was upset. She cried and said, “I don’t want Daddy to die.” By January of this year, he’d lost the use of his hands and arms. His legs are very weak now but he walks a lap of the house each day to stop getting stiff. It’s frustrating when strangers ask, “Can he understand us? Can he hear me?” Of course he can!

I imagined him playing football with the kids and watching rugby together. They’ll be robbed of those memories. I worry about the kids and hope they’ll look back and feel proud of what their daddy has achieved.

 

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