She wasn’t expected to be alive at 12 but girl with rare Pompe disease thrives on parents’ love

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WATCH: “We are not just keeping her alive. We want to give her a life that any other child is entitled to,” says Patricia Ng, mother of Chloe Mah. Chloe, 12, suffers from Pompe disease, a rare fatal condition. Read more:

 

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“Everyone told us she probably can’t talk but when she was 8 years old, she started imitating sounds that we made. That was the first time I heard her call me ‘papa’,” her father said. “The joy is really — I can’t describe it, (I can) only cry over it.”

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