Fear, pain, despair: Breaking silence on endometriosis 'hell'

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Endometriosis occurs when the cells that normally line the inside of the uterus migrate and grow in other parts of the body – mostly the pelvic organs, but also the bowel and bladder.

It was four years before she was diagnosed with endometriosis, a chronic, incurable disease that affects as many as one in 10 women worldwide.

The cells respond to hormonal changes, and their movement or growth often coincides with menstrual cycles. Endometriosis sometimes causes painful lesions and cysts that can result in infertility.The only reliable way to diagnose endometriosis is by laparoscopy, which involves inserting a tiny camera into the patient's abdomen under general anaesthesia.

"For centuries women were told that pain during menstrual periods was normal," Lone Hummelshoj, president of the World Endometriosis Society, told AFP. Institutional support is slowly being established around the world, often through advocacy by experts. In France gynaecologist Chrysoula Zacharopoulou launched an awareness campaign in 2016 and is now in charge of a national strategy announced in 2019.

 

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