Former Selangor MB’s daughter shares experience as cleft-palate patient

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Former Selangor MB’s daughter shares experience as cleft-palate patient thesundaily babies cleftpalate

Nora Abu Hassan was born, her young parents were unprepared to see their newborn with a facial anomaly, one that occurs in 3% of babies born worldwide.Her parents, however, stood by their eldest child, who underwent her first surgery at three months old.

“My extended family believed it was the will of God that I was born this way but my parents refused to accept that.It was the beginning of a journey that would see her undergoing 10 surgeries.Nora’s mother had to feed her with a pipette dropper until her first operation as an infant.Subsequent operations followed even as her father, the late Selangor Mentri Besar Tan Sri Abu Hassan Omar, continued his studies in the United Kingdom.

Apart from telling her story, Nora also hopes to boost public knowledge about cleft-palate through her book.“The objective is to tell parents of such children that they are not alone,” Nora said. Cleft, also known as harelip, is one of the more common birth conditions, according to Clapam secretary Zuraini Ghazali.Today, a guideline called the Cleft Management Protocol is used by hospitals worldwide.If a cleft-palate child is born in a public hospital, Clapam will be informed and a special feeding bottle is provided for free.

 

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