About the disabled heroes who taught me how to live | Malay Mail

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NOVEMBER 13 — I don’t like poverty porn. If you haven’t heard of it, it is just the depiction of poverty to a level that is exploitative and dishonest. It also wearies me sometimes, how Facebook and social media has monetised stories of suffering as well as supposedly inspirational tales....

Erna Mahyuni

That is how motivational speakers operate after all, selling other people’s stories and embellishing their own.She spent much of her life dealing with the effects of being afflicted with Neurofibromatosis 2 and despite gradually losing her sight, hearing and eventually her mobility there are few people I know who had as much zeal to live as her.

The thing is, people shouldn’t be ashamed or afraid to ask for what they need. It’s a vast world out there and people who can, if they choose, help others. Healthcare is a basic need and it should be a basic right. Yet people are driven to bankruptcy for just wanting to live. Will they now start calling for the ban of inhalers and start patronisingly suggesting eco-friendlier alternatives?

 

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