TORONTO -- June is ALS Awareness Month and for the first time Major League Baseball is recognizing June 2 as Lou Gehrig Day in honour of the New York Yankee who died from the disease.
“This is the greatest awareness opportunity we've ever had in the history of ALS so with awareness brings funding, funding brings research and with research brings the hope of treatment that will save people's lives,” Taya Jones, a single mother of three who was diagnosed with ALS in 2018, told CTV’s Your Morning on Wednesday.
Funding is integral to being able to research the disease and find more treatment options and possibly a cure. “We need to make sure that the timeline between Health Canada approval and getting those in the hands of people living with ALS [is] as fast as possible. As you can imagine, with the terminal disease that is rapidly progressing, every day matters, urgency matters,” said Taylor.
Despite being diagnosed three years ago, she didn’t fully explain it to her kids until this past December, but she says they’ve taken it in stride and stepped up to the plate. “Anecdotally, we've seen this for years, we've seen that professional athletes, people who say they were in the best shape of their lives get diagnosed with ALS,” said Taylor. “The research shows that there may very well be a connection, but what this really highlights [is] that we still don't know for sure, and that highlights the gross underfunding of ALS research.”
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