Grieving Couple Raises Awareness for NEC Research

  • 📰 abcnews
  • ⏱ Reading Time:
  • 63 sec. here
  • 10 min. at publisher
  • 📊 Quality Score:
  • News: 52%
  • Publisher: 83%

Health News

Grieving Couple,NEC,Research

A couple who lost their newborn son to necrotising enterocolitis (NEC) are working to build awareness and support for research into the devastating condition. Clinical trials for a potential treatment are planned.

A grieving couple who lost their newborn son to necrotising enterocolitis are working to build awareness and support for research into the devastating condition.Researchers are working to develop treatments for the inflammation behind the gut disease, with clinical trials planned for a drug currently used to treat rheumatoid arthritis."He was a beautiful little boy, he was the nurses' favourite … he loved his cuddles," she said.

"We always try and remember to be brave like Charlie because he fought so hard and tried to be there with us, but unfortunately he couldn't make it in the end."Here was this disease that we'd never heard of, that came out of nowhere, and there wasn't a lot that anyone could do about it."Devastating illness still 'quite poorly understood'

" the gut is inflamed first, and then it dies off. And when it dies off it requires surgery, and those babies that do require surgery, up to 50 per cent of them unfortunately pass away." "Because NEC is so unpredictable, we are often in a bind as to what to say to the parents and how to describe the risk properly, because often we just don't know what the next day will bring," he said."Our smallest babies are about the size of a can of Coke, and about the same weight," Professor Marcel Nold said.

Professor Claudia Nold said the research process could now be supercharged thanks to "machine learning and AI doing a deep analysis" of all the clinical data. "Even if it's just providing information and support, we want to make sure Charlie's life could make a difference," Nathan said.

Grieving Couple NEC Research Awareness Support Clinical Trials Treatment


Thank you for your comment. Your comment will be published after being reviewed.
Please try again later.
We have summarized this news so that you can read it quickly. If you are interested in the news, you can read the full text here. Read more:

 /  🏆 5. in AU

Australia Latest News, Australia Headlines

Similar News:You can also read news stories similar to this one that we have collected from other news sources.

Israel Hamas: Spiderweb of Gaza tunnels raises risks in ground offensiveFighting in densely populated urban areas and moving underground could strip the Israeli military of some of its technological advantages.
Source: FinancialReview - 🏆 2. / 90 Read more »

Young couple pays $3,415,000 for one-of-a-kind home in old butcher’s shopThe striking architect-designed Newtown residence with pool, private courtyard and distinctive timber kitchen attracted four bidders at a hot auction.
Source: smh - 🏆 6. / 80 Read more »

Couple targeted in early morning shooting on Melbourne streetA young couple is lucky to be alive after surviving a hail of bullets at Keilor Lodge in Melbourne&x27;s north-west.
Source: 9NewsAUS - 🏆 10. / 72 Read more »

Plane crash kills married coupleAn elderly couple are suspected to have been killed in an “unsurvivable ” light plane crash in north Queensland.
Source: newscomauHQ - 🏆 9. / 77 Read more »

Young couple splashes $2,225,000 on home with colour scheme they didn’t likeThe auction winners loved the California bungalow’s Malvern East location and its size, but just plan to give it a coat of paint.
Source: theage - 🏆 8. / 77 Read more »

Married couple from North Queensland presumed dead in light plane crash at Finch Hatton, west of MackayA man and a woman in their 70s were on board the aircraft when it went down in mountainous terrain in the Pioneer Valley west of Mackay.
Source: abcnews - 🏆 5. / 83 Read more »