The Sydney 29-year-old had died in his sleep at home from a condition that even as a GP Dr Marrett had never heard of.Eight years ago his parents found out he had died from sudden unexpected death in epilepsy , when a person with epilepsy dies suddenly and prematurely, and no reason for death is found.
“A friend called him around lunch to ask him for golf but he turned it down because he was too tired. We think a combination of lack of sleep, missing tablets and having a few drinks possibly contributed to his death.” It’s estimated there are 300 epilepsy-related deaths each year in Australia with up to half as a result of SUDEP.
“Reducing risk factors associated with SUDEP and epilepsy mortality can save lives and give patients with epilepsy peace of mind. The conversation about risk between doctor and patients with epilepsy needs to be accepted as routine just as it is with other chronic conditions.”
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